This girl was so cute! I had to get a pic of her getting her face painted!
River beating the balloons with a stick! Such a boy!
Our Angel and star for the day! We love you lanny bug!!
There were Rett Facts posted all over the park. This was the year Chelan was born. We finally found out that she had Retts when she turned 4, because it was so new and unknown.
Look at these beautiful girls!!
Chelan touching the Hedgehog
The girls got to feel animals like hedgehogs!
This is where River liked spending his time :)
Seeing all the animals the trainer brought.
Lining up for the Stroll!
Watching a video of all the girls with Retts in Utah. (There are about 33 in Utah)
Mom, Trevor, Me, River , Chelan, & Dad came later.
This girl has influenced all of our lives in such an amazing way!This morning we attended the first annual Strollathon for Rett Syndrome in Utah. It was held at the Nielsen Grove Park in Orem. The weather and the park were beautiful! It was so amazing to feel of these girls sweet spirits. They were all so beautiful! Our own group for Chelan raised over one thousand dollars!! Wow! We feel so touched by the love that has been shared by our friends and family. You are all so amazing to help us with this amazing cause. As a whole group that attended we raised over eight thousand dollars that will be doubled by an organization! We are so happy that funding is going to find a cure. You can still donate on our fund raising site until December (www.firstgiving.com/chelanangel.com). These girls deserve a cure and they are so close to one!! They had really fun events going on as well, an animal trainer, a face painter, crafts and treats. It was all put together so well! It was a wonderful event to be apart of and I hope that I can be more involved next year.
PS. We so appreciate your continued support in voting at Pepsi Refresh, so that Retts can get 250 K in funding this month!! (Link to vote is at the top right of my blog)
I have tried to post a video of the stroll, but it isn't working right now so I will post it later.
PS. We so appreciate your continued support in voting at Pepsi Refresh, so that Retts can get 250 K in funding this month!! (Link to vote is at the top right of my blog)
I have tried to post a video of the stroll, but it isn't working right now so I will post it later.
5 comments:
Wonderful pics! Wish I could have been there-give Chelan my love!
A GREAT post Christin!!! Thanks for being such an amazing advocate for your sister!!! We would never have even made a goal without you!!!
I Love You, Mom
that is so cool that you guys did that...it's so neat getting involved so good job! my kiddies wardrobes are a modge podge! marleys stuff mainly comes from gap, old navy, and target. gavin i am still getting the hang of boy shopping! most of his bottoms i get from gap, but the tops i have a hard time with..they all look so short and fat! some i get from gap and old navy as well, but i shop online a lot for him and try to find little sites that have killer deals! where do you get stuff for river? do you have any place that you go to normally?
Cutie PIE your are just the best little sister EVeR! You guys are so blessed to have Chelan in your lives. I am so proud of all of your work.. LOVE THIS CAUSE!
You are such a good sister. I have never really heard of this until I read your post. Your sister is lucky to have you.
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